Welcome to Teo’s new blog!

We hope you enjoy following our journey through autism as much as we are enjoying it ourselves!  Our lives are forever changed as we have been blessed this year with an ability to communicate with our son after 12 years through the use or the Rapid Prompting Method (RPM).     RPM Soma website    We post Teo’s poetry, thoughts on different subjects, answers to submitted questions (he LOVES to talk about how it feels to be autistic or how his brain processes information.  FEEL FREE TO SUBMIT QUESTIONS!).  We’ll also post videos of his public Q and A sessions and his lesson with Lenae, his RPM teacher and his other facilitators.  I, as his mother, do not edit his thoughts, vocabulary, etc…Please enjoy!  Remember, he’s only 12 years old so please keep your comments positive and encouraging.  Teo is a young man with a Mission…to be a voice for autistics who have yet to find a way to communicate their thoughts and to (in his words…) “spread the truth about autism.”  Thanks for visiting us!

 

 

HI Everyone, THis is from my fellow RPMer in Portland…Niko Boskovic. You should check out his blog and follow him! His words are in CAPS…my response below is in small letters… New post on niko boskovic Response to IACC meeting by nikoboskovic I’D LIKE TO RESPOND TO THIS ARTICLE (“AUTISTIC ADVOCATES CLASH WITH AUTISM PARENTS AT GOVERNMENT COMMITTEE MEETING”) BY SAYING THIS: NO ONE, AND I MEAN NO ONE, SHOULD BE TALKING ABOUT WHAT’S BEST FOR ME BESIDES ME. YES, MY PARENTS KNOW ME BEST IN THE WORLD, BUT THAT DOESN’T MEAN THEY KNOW BETTER. IT PERPLEXES ME THAT WE ARE HAVING THIS DEBATE STILL, AND PEOPLE DON’T SEE HOW LUDICROUS IT IS TO HAVE AN AUTISTIC GROUP REPRESENTED BY NON-AUTISTICS. IMAGINE THE NAACP REPRESENTED BY WHITES. RECALL THAT IMAGE OF A GROUP OF WHITE MEN SIGNING LEGISLATION LIMITING WOMEN’S BIRTH CONTROL… YET IT IS TOTALLY OKAY FOR MANY AUTISTICS TO BE AFFECTED BY THE WILL OF NT’S. I SIMPLY SAY THIS: IF YOU WANT THE VIEWS OF NONVERBAL AUTISTICS TO BE HEARD, INVITE THEM TO THE TABLE. MAKE SURE THEY CAN ACCESS THE MEETING WITH THE SUPPORT THEY NEED. SEEK OUT AUTISTIC PEOPLE WHO ARE NONVERBAL, AND LISTEN TO WHAT THEY HAVE TO SAY. LET YOUR EXPERIENCE OF HOW YOU RAISED A PERSON WHO IS AUTISTIC BE SHADOWED BY THE AUTISTIC PERSON’S EXPERIENCE OF NOT FITTING IN A WORLD THAT THINKS HE IS BROKEN. RIGHT NOW, THE BIGGEST HURDLES WE FACE ARE THE ATTITUDES OF COMMUNITY MEMBERS AND THE IMPOSED LIMITS OF PARENTS. LET YOURSELF ABSTAIN FROM THE PITY PARTY THAT SEEMS TO BE SO MUCH A PART OF THE AUTISM COMMUNITY, AND BELIEVE THAT YOUR CHILD WILL CONTINUE TO DEVELOP AND GAIN NEW SKILLS. MOST OF ALL, GIVE THEM THE CHANCE TO HAVE WHAT WE EACH ASPIRE TO: AN INDEPENDENT LIFE, LOVE, HOUSING THAT SUPPORTS THEIR VISION OF WHAT THEY WANT, A CHANCE TO WORK, MAKE A DECENT LIVING, AND FIND SATISFACTION IN THEIR DAILY LIFE. BESIDES THAT, THEY WANT TO BE ACCEPTED FOR WHO THEY ARE OR KNOW THAT IF THEY NEED SUPPORT, THEY CAN GET IT. FOR ME, THIS IS WHAT OUR RESEARCH DOLLARS SHOULD BE SPENT ON. GIVE AUTISTICS THE MAJORITY PLACE AT THE IACC, AND I GUARANTEE YOU WILL SEE THESE THINGS GET ADRESSED IN A WAY THAT MAKES SENSE FOR US. #IACC nikoboskovic | October 28, 2017 at 2:03 am | Tags: IACC | Categories: advocacy | URL: https://wp.me/p6C8gZ-3t Hi Niko, Well said. I feel like you’re my big brother standing up for me at school. Your political activism is greatly appreciated by me and I’m sure, by so many other autistics who still remain verbally silent and have not been blessed with a way to express themselves yet. I’m approaching society, too, and inviting them to seek the truth about so many things. We have a lot of work to do but we’ll persevere and make a difference! I support you, Bro! Let’s keep in touch. Later, Teo

A Time to Chill at Bo Beach

Give me your tired, your lonely, your distraught,
Give me your curious, your energetic, and your whimsical spirits.
I am rest or invigoration for the soul, depending on what you seek right now.
I am wild at times, yet constant and serene at others.
Some appreciate my moodiness and are willing to look inward and discover that we are not that different, you and I.
But others look at my tumultuous exclamations and wonder how such a beautiful creation can change moods in the blink of an eye.
I must alter my state of existence to feel alive,
For how can we appreciate calm, rolling waves unless we experience crashing, thunderous surf?
Without contrasting times, life’s games would prove to be mundane.
I am here to experience life, too.
I am affected by moon and universal energy .
But to tame me is to strive for the impossible.
I would never exist to please all at the same time,
For that is also impossible.
Variances in me are what touch the souls of everyone at different times in life.
May you find fulfillment with me throughout your life, as my purpose changes within you throughout the years.
Bring me your heart, your mind, your soul,
And I will give you peace.
Matteo Musso, age 13
July 2, 2017

Rebelling

hi! This is Sara, one of Teo’s RPM facilitators. Today we were wrapping up a topic of “rebellion” discussing Miguel Hidalgo, and the rebellion he led. I asked him to use the word “rebel” and possibly apply it to a real life feeling, situation, or circumstance. This is what he came up with:

I rebel against vegetables (just kidding mom). I rebel agains injustice. I sometimes wonder who is with on that. Autistics are slowly rebelling against assumptions. We are slowly finding our voice, but first we must with our voice make a big choice to assume intelligence within ourselves. Though this is an exercise Sara instructed, I find it calming to express myself like this.

To: Dr. Last and all members of the Collegiate Chorale at Luther College

From: Matteo Musso, age 13, autistic, pre-verbal
Matteo had just finished speaking to a class of Education students about autism, when two of the beautiful, big-hearted students from that class, invited him to listen in on the final rehearsal before the 2017 tour of the Luther College Collegiate Chorale. Matteo sat perfectly still the entire time and was mesmerized by what he heard. Then he wrote this lyric poem, one letter at a time, pointing to an alphabet stencil.
Title: I Sat and Listened
I sat and I listened but not just with my ears, for music is much more than sound.
I listened with my heart, my mind, my intelligence and my spirit…and oh, what an experience I had.
My heart leaped. My mind was quiet. My intelligence remembered and my spirit sang in silence with you.
I felt as if I’d released clouds that were cluttering my soul. The harmonic dissonance resolved in perfect synergy with my soul’s release of that which hampered the next step in my evolution.
Can you fathom the power of your musical gifts? 
I sat there and listened. But in truth, I experienced an emotional upheaval that inspired me to live life to its fullest amidst the challenges of my autism.
I thank you all for the emotional energy you expend while sharing your music. I feel each vibration. You never know how you can change a life by sharing your gifts.
I sat and listened. But even more, I sat there evolving with each note you sang.
Solo Deo Gloria
Your new musical fan and groupie,
Matteo Musso